Partnering with Patients in Health Research: What Lessons have we Learned? (Archive)

2020-02-25

12:00 PM - 1:00 PM EST

There is growing interest in engaging patients and caregivers in healthcare research as partners and collaborators, as a way of enhancing the quality and relevance of research. Patient partners draw from their personal experiences and provide support with project development, oversight and dissemination of results. Some examples include: advising on important study outcomes, providing insight into developing patient-friendly learning tools, and acting as research advocates, among many others. Furthermore, funding agencies (i.e. CIHR) are increasingly encouraging patient engagement in research. This is prompting institutions to adapt their practices and develop guidelines for patient engagement in research to ensure the process is mutually beneficial and complies with institutional regulations. This webinar will give an overview of our journey in developing, implementing and improving patient engagement in research including some of the challenges that inevitably arose. We will also delve into more specific topics including training requirements, safety, privacy, compensation and risk related to engaging patients in research.